Post Cushing’s Surgery – 1 year on

It's been one whole year since my pituitary tumour that was causing Cushing's was removed by the amazing (and famous!) Mr Ahmed and as such I'm now in remission. We're never considered cured as there is around a 30% recurrence rate and it's not an easy recovery, nor are we guaranteed to recover 100%. However … Continue reading Post Cushing’s Surgery – 1 year on

Post Cushing’s Surgery – month 11

This month has been a very mixed month for me. I'm still improving but some issues with work have set me back and also given me some much needed education on how to cope now I'm adrenal insufficient. I'm still finding it impossible to wake up and stay awake on a morning. I can get … Continue reading Post Cushing’s Surgery – month 11

Post Cushing’s surgery – month 10

I can't believe it's double figures already. It seems to have gone so fast; I'll soon be at my 1 year anniversary. Of course we're still in the midst of the Covid-19 lockdown and I did see one article on the BBC that rings true for healthcare in general and the Cushing's recovery but shouldn't. … Continue reading Post Cushing’s surgery – month 10

Post Cushing’s Surgery – month 9

This month, 3 months after returning to work, I finally got a structured plan for my shifts. It's an 8 week plan slowly increasing me from doing 4 afternoon shifts of 4 hours to 5 afternoon shifts of 4 hours. Until now I've just been logging on when I can and logging off when it … Continue reading Post Cushing’s Surgery – month 9

Post Cushing’s surgery – month 8

This month we had many adventures with HR! It seems they've realised this isn't a 'get better in a few weeks' type of illness and are trying to put on a bit more support and understanding, starting with an occupational health therapist. The OH therapist was mentioned at the start of this month and I … Continue reading Post Cushing’s surgery – month 8

Post Cushing’s surgery – month 6

6 months seems to have gone by so fast. In some ways it feels like I've come a long way and in others it feels like I've barely gone anywhere. I started this month with having a catch up with my GP. I've been getting some odd lumps around my eyes and she noticed straight … Continue reading Post Cushing’s surgery – month 6

Post Cushing’s surgery – month 5

5 months on, it seems time has really flown by since my surgery. Early this month I got excited. I noticed there was a smudge by my neck. Just a hint of shadow. I'd been cleaning out the degus so possibly it was just dirt but I decided it's the beginning of my collarbones starting … Continue reading Post Cushing’s surgery – month 5

Post Cushing’s surgery – weeks 9 – 14

I've extended the range on this one as that takes us neatly to the end of 2019 and only a week past the official 3 month mark of my surgery. Week 9 I'm still really struggling with waking up and sleeping until midday. The aches haven't gone at all but I haven't gotten any worse … Continue reading Post Cushing’s surgery – weeks 9 – 14

Post Cushing’s surgery – weeks 2 – 3

I was going to stay splitting the recovery up into weeks but to be honest things take so long to change there's not much point! Week 2 was the first week out of hospital really and it was quite a scary thought for me. I was convinced I would go into adrenal crisis at any … Continue reading Post Cushing’s surgery – weeks 2 – 3

Post Cushing’s surgery – Week 1

Recovery from surgery is meant to be ok, recovery from Cushing's... not so much. So I'll continue to document my journey as I can and hopefully it will help give hope to others suffering and help me on low days to look back and realise how much better things have become. The first week for … Continue reading Post Cushing’s surgery – Week 1