Post Cushing’s surgery – month 8

This month we had many adventures with HR! It seems they've realised this isn't a 'get better in a few weeks' type of illness and are trying to put on a bit more support and understanding, starting with an occupational health therapist. The OH therapist was mentioned at the start of this month and I … Continue reading Post Cushing’s surgery – month 8

Post Cushing’s surgery – month 6

6 months seems to have gone by so fast. In some ways it feels like I've come a long way and in others it feels like I've barely gone anywhere. I started this month with having a catch up with my GP. I've been getting some odd lumps around my eyes and she noticed straight … Continue reading Post Cushing’s surgery – month 6

Post Cushing’s surgery – month 5

5 months on, it seems time has really flown by since my surgery. Early this month I got excited. I noticed there was a smudge by my neck. Just a hint of shadow. I'd been cleaning out the degus so possibly it was just dirt but I decided it's the beginning of my collarbones starting … Continue reading Post Cushing’s surgery – month 5

Post Cushing’s surgery – weeks 9 – 14

I've extended the range on this one as that takes us neatly to the end of 2019 and only a week past the official 3 month mark of my surgery. Week 9 I'm still really struggling with waking up and sleeping until midday. The aches haven't gone at all but I haven't gotten any worse … Continue reading Post Cushing’s surgery – weeks 9 – 14

Post Cushing’s surgery – weeks 2 – 3

I was going to stay splitting the recovery up into weeks but to be honest things take so long to change there's not much point! Week 2 was the first week out of hospital really and it was quite a scary thought for me. I was convinced I would go into adrenal crisis at any … Continue reading Post Cushing’s surgery – weeks 2 – 3

Post Cushing’s surgery – Week 1

Recovery from surgery is meant to be ok, recovery from Cushing's... not so much. So I'll continue to document my journey as I can and hopefully it will help give hope to others suffering and help me on low days to look back and realise how much better things have become. The first week for … Continue reading Post Cushing’s surgery – Week 1

Cushing’s Surgery

I didn't expect to take this long to update on my surgery but recovery is no joke. So here we are, 9.5 weeks on. I'll update in a series of posts including the day of the surgery and installments on the aftermath. I ended up being a bit rushed into the surgery so my pre-op … Continue reading Cushing’s Surgery

Surgery date

Well so much for August surgery! Unfortunately my surgeon got an influx of much higher priority patients and all surgeries got pushed back. Luckily however he's putting on extra slots so I am going in this Sunday, 22nd September, to finally have the little beast evicted! I go in on Thursday for my pre-op assessments … Continue reading Surgery date

Treatment is getting closer

Once again time has slipped by and it's been 2 months since I posted an update! There hasn't been a huge amount to update though really until now. I've been on the metyrapone for nearly 9 weeks now and it has definitely made a difference, both good and bad. The thing with high cortisol is … Continue reading Treatment is getting closer