A Beginners Guide to Cushing’s

Cushing's is a weird, scary, complicated disease and as such it can be tough to get your head around it. I thought I'd have a go at an easy to understand, basic guide to try and help those going through this or just curious about it. It's based around my own experiences and research but … Continue reading A Beginners Guide to Cushing’s

Post Cushing’s Surgery – 18 months on

18 months already! It seems to have gone by so quickly. I will give an update on some of the victories and trials I've faced since my 1 year update and things I'm still learning about this disease and myself. There has also been a virtual conference held by the Pituitary Foundation in March 2021 … Continue reading Post Cushing’s Surgery – 18 months on

IPSS results and next steps

The results are in! 5 weeks after I had my IPSS (to check out what that is look up the leaflet here or have a read of my personal experience of it). Finally it feels like I'm making some progress with Cushing's. I went for my follow up appointment yesterday, 5 weeks after my IPSS … Continue reading IPSS results and next steps

New year, new hospital

Once again it's been a while but there hasn't been very much to report so that's my excuse. I've had a couple of appointments this week so here's what the latest situation is. I had my MRI on Christmas Eve. Not the most interesting way to spend the day perhaps but it's another step forward … Continue reading New year, new hospital