Post Cushing’s Surgery – 18 months on

18 months already! It seems to have gone by so quickly. I will give an update on some of the victories and trials I've faced since my 1 year update and things I'm still learning about this disease and myself. There has also been a virtual conference held by the Pituitary Foundation in March 2021 … Continue reading Post Cushing’s Surgery – 18 months on

Ki Hara – helping my recovery – the sequel

In November 2020 I decided to try and aid my muscle and fitness recovery following Cushing's by doing Ki Hara; a type of yoga that I used to practise. With my instructor, Ellie, I have now completed 5 personal sessions and have videos of all of them that I can use to continue my progress. … Continue reading Ki Hara – helping my recovery – the sequel

Ki Hara – helping my recovery

I recently read a few medical studies regarding regaining strength following Cushing's. The study found most of the participants lost grip strength and leg muscle function and that with no deliberate intervention following surgical remission, this did not improve. I have decided to try and fight that and will document my progress on this blog. … Continue reading Ki Hara – helping my recovery

The Clawing Cat that is Cushing’s

Just for fun I came up with an analogy to help people understand just how much damage Cushing's can cause, how long it takes to heal from it and what it gets replaced with. I decided to think of Cushing's as a particularly grumpy cat that loves to claw at you. You're stuck in a … Continue reading The Clawing Cat that is Cushing’s

Post Cushing’s Surgery – 1 year on

It's been one whole year since my pituitary tumour that was causing Cushing's was removed by the amazing (and famous!) Mr Ahmed and as such I'm now in remission. We're never considered cured as there is around a 30% recurrence rate and it's not an easy recovery, nor are we guaranteed to recover 100%. However … Continue reading Post Cushing’s Surgery – 1 year on

Post Cushing’s Surgery – month 11

This month has been a very mixed month for me. I'm still improving but some issues with work have set me back and also given me some much needed education on how to cope now I'm adrenal insufficient. I'm still finding it impossible to wake up and stay awake on a morning. I can get … Continue reading Post Cushing’s Surgery – month 11

Post Cushing’s surgery – month 10

I can't believe it's double figures already. It seems to have gone so fast; I'll soon be at my 1 year anniversary. Of course we're still in the midst of the Covid-19 lockdown and I did see one article on the BBC that rings true for healthcare in general and the Cushing's recovery but shouldn't. … Continue reading Post Cushing’s surgery – month 10

Post Cushing’s Surgery – month 9

This month, 3 months after returning to work, I finally got a structured plan for my shifts. It's an 8 week plan slowly increasing me from doing 4 afternoon shifts of 4 hours to 5 afternoon shifts of 4 hours. Until now I've just been logging on when I can and logging off when it … Continue reading Post Cushing’s Surgery – month 9

Post Cushing’s surgery – month 8

This month we had many adventures with HR! It seems they've realised this isn't a 'get better in a few weeks' type of illness and are trying to put on a bit more support and understanding, starting with an occupational health therapist. The OH therapist was mentioned at the start of this month and I … Continue reading Post Cushing’s surgery – month 8

Post Cushing’s surgery – month 7

This month continued to be an improvement, although it was tough due to Covid-19 lockdown. No one can make their mind up if those of us in remission are high risk or not. Official word from the Endocrine Society was we're not at higher risk to catch it, but we are at higher risk of … Continue reading Post Cushing’s surgery – month 7