Surgery date

Well so much for August surgery! Unfortunately my surgeon got an influx of much higher priority patients and all surgeries got pushed back. Luckily however he's putting on extra slots so I am going in this Sunday, 22nd September, to finally have the little beast evicted! I go in on Thursday for my pre-op assessments … Continue reading Surgery date

IPSS results and next steps

The results are in! 5 weeks after I had my IPSS (to check out what that is look up the leaflet here or have a read of my personal experience of it). Finally it feels like I'm making some progress with Cushing's. I went for my follow up appointment yesterday, 5 weeks after my IPSS … Continue reading IPSS results and next steps

IPSS – a patient’s experience

Inferior Petrosal Sinus Sampling or IPSS is sometimes used to pinpoint where the source of Cushing's is coming from, generally when it's highly suspected to be a tumour on the pituitary gland. I was 'lucky' enough to have one of these a couple of days ago as my MRI for my pituitary came back clean … Continue reading IPSS – a patient’s experience

Rare disease day

28 February is Rare Disease Day so it's probably a good day for another update on my Cushing's. It's important to highlight rare diseases; yes they affect less people than the big, famous diseases such as cancer but they can be just as debilitating and life threatening, possibly more so because they don't get the … Continue reading Rare disease day

New year, new hospital

Once again it's been a while but there hasn't been very much to report so that's my excuse. I've had a couple of appointments this week so here's what the latest situation is. I had my MRI on Christmas Eve. Not the most interesting way to spend the day perhaps but it's another step forward … Continue reading New year, new hospital

Long overdue Cushing’s update

Wow well I knew I'd been meaning to blog for a while and kept forgetting but this takes the biscuit! So here we are, a long overdue follow up to what has happened since my initial endocrinologist visit. As mentioned in the last post I have definitely declined as far as my symptoms go. They're … Continue reading Long overdue Cushing’s update

Slowly losing my mind

This isn't going to be a cheerful post, you've been warned. My potential Cushing's diagnosis is slowly moving along. I met up with an endocrinologist this week for the first time; he's not the specialist that I was referred to but is part of his team and it was an encouraging first appointment. He didn't … Continue reading Slowly losing my mind