Surgery date

Well so much for August surgery! Unfortunately my surgeon got an influx of much higher priority patients and all surgeries got pushed back. Luckily however he's putting on extra slots so I am going in this Sunday, 22nd September, to finally have the little beast evicted! I go in on Thursday for my pre-op assessments … Continue reading Surgery date

Treatment is getting closer

Once again time has slipped by and it's been 2 months since I posted an update! There hasn't been a huge amount to update though really until now. I've been on the metyrapone for nearly 9 weeks now and it has definitely made a difference, both good and bad. The thing with high cortisol is … Continue reading Treatment is getting closer

IPSS results and next steps

The results are in! 5 weeks after I had my IPSS (to check out what that is look up the leaflet here or have a read of my personal experience of it). Finally it feels like I'm making some progress with Cushing's. I went for my follow up appointment yesterday, 5 weeks after my IPSS … Continue reading IPSS results and next steps

Reading habits

I was reading this article over on Cup of Jo and it got me to thinking about how I read and other people read. The concept of 'binge reading' to me seems weird... isn't this how you're supposed to read? I just can't understand how you would pick up a book if you only have … Continue reading Reading habits

Hospital admission as an adult

With the Cushing's testing, my arthritis and my DVT I've experienced quite a few day clinics and even the odd day procedure in my time as an adult but until my PEs this March I hadn't experienced actually being an in-patient. The last time was when I broke and dislocated my elbow at the age … Continue reading Hospital admission as an adult

IPSS – a patient’s experience

Inferior Petrosal Sinus Sampling or IPSS is sometimes used to pinpoint where the source of Cushing's is coming from, generally when it's highly suspected to be a tumour on the pituitary gland. I was 'lucky' enough to have one of these a couple of days ago as my MRI for my pituitary came back clean … Continue reading IPSS – a patient’s experience

WoW characters – Alliance

Just a quick overview of my Alliance characters on World of Warcraft. Partly in case anyone is curious, more to remind me what each one has on them or I have planned for them. There might be a little background but I don't tend to roleplay in WoW. You can also check out my Horde … Continue reading WoW characters – Alliance

WoW characters – Horde

Just a quick overview of my Horde characters on World of Warcraft. Partly in case anyone is curious, more to remind me what each one has on them or I have planned for them. There might be a little background but I don't tend to roleplay in WoW. You can also check out my Alliance … Continue reading WoW characters – Horde

Yet another road block

18th March 2019. 2 years, 6 months and 2 days after my DVT. 2 years and 2 days after I came off warfarin. I'm back on blood thinners for life as I have been diagnosed with multiple large bilaterial pulmonary embolisms. My health just keeps getting better! Still, it appropriately happened in Blood Clot Awareness … Continue reading Yet another road block

Istaria characters

Istaria is a fantastic MMO that is around 15 years old now. Few people know about it and it does look dated but is still one of the best I’ve played. The detail in the animation is incredible and beats games made this year (even if the overall graphics are old and blocky compared to … Continue reading Istaria characters