Rare disease day

28 February is Rare Disease Day so it's probably a good day for another update on my Cushing's. It's important to highlight rare diseases; yes they affect less people than the big, famous diseases such as cancer but they can be just as debilitating and life threatening, possibly more so because they don't get the … Continue reading Rare disease day

New year, new hospital

Once again it's been a while but there hasn't been very much to report so that's my excuse. I've had a couple of appointments this week so here's what the latest situation is. I had my MRI on Christmas Eve. Not the most interesting way to spend the day perhaps but it's another step forward … Continue reading New year, new hospital

Long overdue Cushing’s update

Wow well I knew I'd been meaning to blog for a while and kept forgetting but this takes the biscuit! So here we are, a long overdue follow up to what has happened since my initial endocrinologist visit. As mentioned in the last post I have definitely declined as far as my symptoms go. They're … Continue reading Long overdue Cushing’s update

Slowly losing my mind

This isn't going to be a cheerful post, you've been warned. My potential Cushing's diagnosis is slowly moving along. I met up with an endocrinologist this week for the first time; he's not the specialist that I was referred to but is part of his team and it was an encouraging first appointment. He didn't … Continue reading Slowly losing my mind

I actually quite like this one but it's still true to my point. No, we don't always recover. If I don't get back to 100% now I'll feel like an even bigger failure!

2 years on

They say time flies when you're having fun. Well I'm not sure I'd necessarily say the past 2 years have been fun but they have certainly flown. 2 years since I was diagnosed with my DVT. It's definitely been an interesting 2 years. First of all finding out about DVTs in general and how to … Continue reading 2 years on

No rhyme nor reason

We all know hormones are funny things even when behaving. Just look at the joys they wreak on women every month, throwing your mood one way this minute and the opposite the next. It's even more fun when your hormone system is actually out of wack.Many people with hormone-related issues such as Cushing's or thyroid … Continue reading No rhyme nor reason

Diagnostic testing

I've had my referral come through for the endocrinologist; 18th September. It seems an age away. In the meantime I'm still waiting on the results for previous tests I've had. I spoke to my GP this week as she'd obviously thought the urine tests would be back but they're not unfortunately so I'm waiting until … Continue reading Diagnostic testing