IPSS results and next steps

The results are in! 5 weeks after I had my IPSS (to check out what that is look up the leaflet here or have a read of my personal experience of it). Finally it feels like I'm making some progress with Cushing's. I went for my follow up appointment yesterday, 5 weeks after my IPSS … Continue reading IPSS results and next steps

Reading habits

I was reading this article over on Cup of Jo and it got me to thinking about how I read and other people read. The concept of 'binge reading' to me seems weird... isn't this how you're supposed to read? I just can't understand how you would pick up a book if you only have … Continue reading Reading habits

Hospital admission as an adult

With the Cushing's testing, my arthritis and my DVT I've experienced quite a few day clinics and even the odd day procedure in my time as an adult but until my PEs this March I hadn't experienced actually being an in-patient. The last time was when I broke and dislocated my elbow at the age … Continue reading Hospital admission as an adult

IPSS – a patient’s experience

Inferior Petrosal Sinus Sampling or IPSS is sometimes used to pinpoint where the source of Cushing's is coming from, generally when it's highly suspected to be a tumour on the pituitary gland. I was 'lucky' enough to have one of these a couple of days ago as my MRI for my pituitary came back clean … Continue reading IPSS – a patient’s experience

WoW characters – Alliance

Just a quick overview of my Alliance characters on World of Warcraft. Partly in case anyone is curious, more to remind me what each one has on them or I have planned for them. There might be a little background but I don't tend to roleplay in WoW. You can also check out my Horde … Continue reading WoW characters – Alliance

WoW characters – Horde

Just a quick overview of my Horde characters on World of Warcraft. Partly in case anyone is curious, more to remind me what each one has on them or I have planned for them. There might be a little background but I don't tend to roleplay in WoW. You can also check out my Alliance … Continue reading WoW characters – Horde

Yet another road block

18th March 2019. 2 years, 6 months and 2 days after my DVT. 2 years and 2 days after I came off warfarin. I'm back on blood thinners for life as I have been diagnosed with multiple large bilaterial pulmonary embolisms. My health just keeps getting better! Still, it appropriately happened in Blood Clot Awareness … Continue reading Yet another road block