Cushing’s Surgery

I didn't expect to take this long to update on my surgery but recovery is no joke. So here we are, 9.5 weeks on. I'll update in a series of posts including the day of the surgery and installments on the aftermath. I ended up being a bit rushed into the surgery so my pre-op … Continue reading Cushing’s Surgery

Cushing’s resources

I wanted to get a little list together of some of the good resources I've found on my Cushing's journey so others can easily find the info (and so can I instead of trawling through dozens of bookmarks) Videos: Update on the Management of Cushing's Disease - from August 2019, a presentation from a medical … Continue reading Cushing’s resources

Surgery date

Well so much for August surgery! Unfortunately my surgeon got an influx of much higher priority patients and all surgeries got pushed back. Luckily however he's putting on extra slots so I am going in this Sunday, 22nd September, to finally have the little beast evicted! I go in on Thursday for my pre-op assessments … Continue reading Surgery date

Treatment is getting closer

Once again time has slipped by and it's been 2 months since I posted an update! There hasn't been a huge amount to update though really until now. I've been on the metyrapone for nearly 9 weeks now and it has definitely made a difference, both good and bad. The thing with high cortisol is … Continue reading Treatment is getting closer

IPSS results and next steps

The results are in! 5 weeks after I had my IPSS (to check out what that is look up the leaflet here or have a read of my personal experience of it). Finally it feels like I'm making some progress with Cushing's. I went for my follow up appointment yesterday, 5 weeks after my IPSS … Continue reading IPSS results and next steps

Reading habits

I was reading this article over on Cup of Jo and it got me to thinking about how I read and other people read. The concept of 'binge reading' to me seems weird... isn't this how you're supposed to read? I just can't understand how you would pick up a book if you only have … Continue reading Reading habits

Hospital admission as an adult

With the Cushing's testing, my arthritis and my DVT I've experienced quite a few day clinics and even the odd day procedure in my time as an adult but until my PEs this March I hadn't experienced actually being an in-patient. The last time was when I broke and dislocated my elbow at the age … Continue reading Hospital admission as an adult