Post Cushing’s surgery – month 7

This month continued to be an improvement, although it was tough due to Covid-19 lockdown. No one can make their mind up if those of us in remission are high risk or not. Official word from the Endocrine Society was we're not at higher risk to catch it, but we are at higher risk of … Continue reading Post Cushing’s surgery – month 7

Post Cushing’s surgery – month 6

6 months seems to have gone by so fast. In some ways it feels like I've come a long way and in others it feels like I've barely gone anywhere. I started this month with having a catch up with my GP. I've been getting some odd lumps around my eyes and she noticed straight … Continue reading Post Cushing’s surgery – month 6

Post Cushing’s surgery – month 5

5 months on, it seems time has really flown by since my surgery. Early this month I got excited. I noticed there was a smudge by my neck. Just a hint of shadow. I'd been cleaning out the degus so possibly it was just dirt but I decided it's the beginning of my collarbones starting … Continue reading Post Cushing’s surgery – month 5

Post Cushing’s surgery – month 4

Time to move into months! Progress definitely starts to slow down a few months after surgery. Your body is slowly getting used to a new normal. The huge drop in cortisol and therefore withdrawal has become less and it's easy to fool yourself into thinking this is it, you're winning! For me, 4 months was … Continue reading Post Cushing’s surgery – month 4

Post Cushing’s surgery – weeks 9 – 14

I've extended the range on this one as that takes us neatly to the end of 2019 and only a week past the official 3 month mark of my surgery. Week 9 I'm still really struggling with waking up and sleeping until midday. The aches haven't gone at all but I haven't gotten any worse … Continue reading Post Cushing’s surgery – weeks 9 – 14

Post Cushing’s surgery – weeks 4 – 8

I'm approaching my 7 month anniversary so figured I'd better get on with writing this blog up! Sorry guys! Week 4 was the week Mum went home. I still hurt everywhere, was sleeping lots and didn't really have an appetite but it was all the same each day and as my parents live in a … Continue reading Post Cushing’s surgery – weeks 4 – 8

Post Cushing’s surgery – weeks 2 – 3

I was going to stay splitting the recovery up into weeks but to be honest things take so long to change there's not much point! Week 2 was the first week out of hospital really and it was quite a scary thought for me. I was convinced I would go into adrenal crisis at any … Continue reading Post Cushing’s surgery – weeks 2 – 3

Post Cushing’s surgery – Week 1

Recovery from surgery is meant to be ok, recovery from Cushing's... not so much. So I'll continue to document my journey as I can and hopefully it will help give hope to others suffering and help me on low days to look back and realise how much better things have become. The first week for … Continue reading Post Cushing’s surgery – Week 1

Cushing’s Surgery

I didn't expect to take this long to update on my surgery but recovery is no joke. So here we are, 9.5 weeks on. I'll update in a series of posts including the day of the surgery and installments on the aftermath. I ended up being a bit rushed into the surgery so my pre-op … Continue reading Cushing’s Surgery

Cushing’s resources

I wanted to get a little list together of some of the good resources I've found on my Cushing's journey so others can easily find the info (and so can I instead of trawling through dozens of bookmarks) Videos: Update on the Management of Cushing's Disease - from August 2019, a presentation from a medical … Continue reading Cushing’s resources